Resource Guide for Systemic Lupus Erythematosus

RESOURCES

Address: 28 West 44th St., Suite 1217 New York, NY 10036

Phone: 1-212-218-2840 1-800-867-1743 (toll free)

E-mail Address: info@lupusresearch.org

Internet Address: http://www.lupusresearch.org

Description of Services Provided: The Alliance is a nonprofit organization devoted exclusively to the support of promising research for the prevention, treatment, and cure of lupus. Through accelerated, focused, goal-oriented research programs, the ALR aims to promote basic and clinical sciences to achieve major advances leading to a better understanding of the cause of lupus.

RESOURCES

Address: 2000 L St, NW, Suite 710 Washington, DC 20036

Phone: 1-202-349-1155

Internet Address: http://www.lupus.org

Description of Services Provided: This is the main voluntary organization devoted to lupus. The LFA assists local chapters in providing services to people with lupus, works to educate the public about lupus, and supports lupus research. Through a network of more than 500 branches and support groups, the chapters provide education through information and referral services, health fairs, newsletters, publications, and seminars. Chapters provide support to people with lupus, their families, and friends through support group meetings, hospital visits, and telephone help lines.

RESOURCES

Address: 330 Seventh Avenue, Suite 1701 New York, NY 10001

Phone: 1-212-685-4118 1-800-74-LUPUS (toll free)

Internet Address: http://www.lupusny.org

Description of Services Provided: The SLE Foundation, Inc supports and encourages medical research to find the cause and cure of lupus and improve its diagnosis and treatment. It also provides a wide variety of services to help patients with lupus and their families. In addition, this voluntary organization conducts a broad-based public education program to raise awareness of lupus and increase understanding of this serious, chronic, autoimmune disease.